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| I love my son's face on this picture. He loves doing balloon releases for his brother. |
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| Our sweet friend who has come to every release with us has unfortunately always had her balloons get stuck in a tree around Spencer's grave. To no surprise one of hers got stuck again, but... |
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| ...this time it flew away. |
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| Thank you to all my friends and family that were able to celebrate with us. |
So much has gone on in these first 6 months of 2015 that I haven't had a chance to really update the blog. Later last year my husband received a promotion which led us to making a decision to move closer to his work. So with Spencer's one year birthday coming up we were also getting ready to list our home on the market. It was not the best timing and it did make it extremely difficult for us but once again we trusted God's plan for our family. I prayed that if this was what He wanted that He would make it a seamless process and it would go quickly. We listed the house the Friday before Spencer's one year birthday and it sold in 10 days. We will be moving soon to a lease home as we search for another home but with all that happened last year and now more transitions this year I truly give God all the glory and praise because He has never let us go, not once. Lastly here is a song that touched me and seems perfect for Spencer's 1st Birthday.
“In you, Lord my God, I put my trust. Show me your ways, Lord, teach me your paths. Guide me in your truth and teach me, for you are God my Savior, and my hope is in you all day long.” Psalm 25:1, 4-5
Came across your blog by way of Gabriel's purpose. I came upon that blog because my grandson had LUTO - and I was searching to learn more about it. Rachel's blog helped me to understand what my children were going through. Just like you they found out in January 2013 at about 20+ weeks that something wasn't right - then at about 27 weeks learn there was nothing they could do. They had various input from doctors - one thinking he might make it if his lungs would develop ect., but would have lots of health issues and probably kidney transplants. Sadly, he was born May 16, 2013 (due date was 6/4) weighed 7lbs 1 oz a beautiful little fella - who fought for 7 hours but his lungs just weren't developed and of course the kidney issues ect. Reading your blog my heart just ached for you They do now have a beautiful Rainbow son, who is 8 months old - but Derek will never be forgotten and like you for his first birthday they had a ballon release then again for his 2nd - reading your blog and Rachel's helps me to understand what Derek's mommy & daddy are going through and what they do to get through is fine. Anyway that helps them to find comfort. We know that our Rainbow Henry has a special angel watching over him. Thank you for sharing your story and God Bless you and your family. (hope I made sense) Margie
ReplyDeleteMargie,
DeleteI am extremely sorry for what they have had to go through and you also. It is comforting to know that something so rare we find connections through blogs, friends, and social media to know that we aren't the only ones. I will pray for them as they continue their journey and congrats on their newest addition. Thank you for taking the time to learn more about LUTO and how others have dealt with it, it makes my heart happy to see that you are still reaching out for that for them. Take care and blessings to you all!!